Massage Therapy for Pompe Disease - Pompe Disease News

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If you have late-onset Pompe disease, you likely will need to see many specialists such as pulmonary physicians, cardiologists, and physiotherapists to help you manage the disorder’s different symptoms.

To help with muscle weakness and other Pompe disease-related symptoms, it also may be beneficial to add a massage therapist to the list of healthcare professionals you see.

What is Pompe disease?


Pompe disease is a rare genetic disease characterized by the abnormal buildup of a sugar molecule called glycogen inside cells. This buildup impairs the working of different organs and tissues, especially the heart, respiratory and skeletal muscles.

Muscle weakness, especially in the torso and legs, often is the first symptom of late-onset Pompe disease. Patients may develop a waddling or swaying gait and may find it difficult to stand after sitting, running, or climbing stairs.

The severity of respiratory problems due to weakness in the diaphragm and muscles between the ribs can vary greatly among patients.

What is massage therapy?


Massage therapy can enhance wellness or help manage a medical condition. Generally considered part of complementary and integrative medicine in the U.S., it’s increasingly offered along with standard treatment for a wide range of conditions.

According to the American Massage Therapy Association, 75% of respondents to a consumer survey reported that the main reason they got a massage in the past 12 months was medical or stress-related.

Massage therapy generally involves pressing, rubbing, and manipulating the skin, muscles, tendons, and ligaments. It may range from light stroking to deep pressure.

There are many different massage techniques and styles, including those that are for comfort and those for specific conditions or diseases. The types include connective tissue massage, deep tissue massage, geriatric massage, massotherapy, medical massage, reflexology, neuromuscular therapy, Swedish massage, neuropathy massage and sports massage.

How massage therapy may help you


Natural healing methods such as meditation, acupuncture, and massage may work for some people with neuromuscular diseases.

Massage therapy potentially can ease pain and muscle weakness that can put extra stress on joints, ligaments, and muscles used for breathing.

While sports massage is a well-known therapy for athletes, it also is one of the massage types that can effectively treat people with chronic conditions such as Pompe disease. Such massages can help:

  • Improve circulation
  • Lower blood pressure
  • Enhance the immune system
  • Improve muscle and joint flexibility
  • Relieve muscle aches and stiffness
  • Promote deeper and easier breathing
  • Improve digestion and elimination
  • Help relieve tension headaches
  • Improve muscle tone
  • Reduce swelling
Sports massage case study


A 43-year-old Pompe disease patient who was using a wheelchair and was being treated with enzyme replacement therapy (ERT) saw a sports massage therapist for the first time. He was experiencing significant fatigue (page 53 of the PDF newsletter), weakness in his chest, lower-limb cramps, and muscle tightness in his back, neck, and shoulders.

The therapist began work on the patient’s chief respiratory muscles and accessory breathing muscles of the neck and chest. He also massaged the shoulders and upper back. He then created a treatment plan of four sessions of 60–80 minutes each over two weeks. The plan intended to address other muscle groups in future sessions.

The therapist also used muscle energy techniques, a manual therapy that uses a patient’s soft muscle contractions to relax and lengthen muscles, normalize joint function, and improve range of motion.

After treatment, the patient reported his muscles were looser, less achy, and more relaxed.

Side-alternating vibration training (SAVT) case study


A 34-year-old late-onset Pompe disease patient who never used ERT and used a cane to walk was experiencing chronic weakness and fatigue, and a marked decrease in physical abilities.

After 15 weeks of SAVT, the patient’s six-minute walk distance increased 70%. Her muscle jumping power rose by 64%, and her isometric knee extensor strength increased 17%. The patient also achieved more normal use of her ankles, knees, and joints.

Who can administer massage therapy?


Caregivers may administer massage therapy, but a trained therapist can be more effective at pinpointing the proper areas and using the right amounts of pressure. What is key is understanding the patient’s pain tolerance.

In some cases, patients also may self-administer massage therapy using massage sticks or other tools. A massage therapist or physiotherapist can offer advice.

How to find a massage therapist


Ask your doctor for a recommendation. Most states regulate massage therapists through licensing, registration, or certification requirements. Don’t hesitate to ask a potential therapist about his or her qualifications and experience, and how frequent the sessions might be.

What to expect during a session


Massages may last from 10 to 90 minutes, depending on your needs. You should wear loose-fitting clothing. You typically will be on a table and covered with a sheet. It’s also possible to receive massage therapy while sitting in a chair.

The massage therapist likely will perform an evaluation through touch to locate painful or tense areas and determine how much pressure to apply. He or she will ask about your symptoms and explain what kind of massage technique they will use.

What are the risks?


Massage therapy appears to have very few serious risks if a properly trained therapist performs it. There have been, however, rare reports of serious side effects, such as a blood clot, nerve injury, or bone fracture. Elderly people may be at greater risk of injury.

You may feel a bit sore the day after a session, but a massage shouldn’t be painful or uncomfortable. If any part of the massage doesn’t feel right or is painful, let your therapist know right away.

Despite its benefits, massage is not a replacement for regular medical care. Let your doctor know you’re trying massage therapy and be sure to follow any standard treatment you’ve been prescribed.

Last updated: Dec. 8, 2020

***

Pompe Disease News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

  • Author Details
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Mary M. Chapman began her professional career at United Press International, running both print and broadcast desks. She then became a Michigan correspondent for what is now Bloomberg BNA, where she mainly covered the automotive industry plus legal, tax and regulatory issues. A member of the Automotive Press Association and one of a relatively small number of women on the car beat, Chapman has discussed the automotive industry multiple times of National Public Radio, and in 2014 was selected as an honorary judge at the prestigious Cobble Beach Concours d’Elegance. She has written for numerous national outlets including Time, People, Al-Jazeera America, Fortune, Daily Beast, MSN.com, Newsweek, The Detroit News and Detroit Free Press. The winner of the Society of Professional Journalists award for outstanding reporting, Chapman has had dozens of articles in The New York Times, including two on the coveted front page. She has completed a manuscript about centenarian car enthusiast Margaret Dunning, titled “Belle of the Concours.”
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Özge has a MSc. in Molecular Genetics from the University of Leicester and a PhD in Developmental Biology from Queen Mary University of London. She worked as a Post-doctoral Research Associate at the University of Leicester for six years in the field of Behavioural Neurology before moving into science communication. She worked as the Research Communication Officer at a London based charity for almost two years.
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99409faa4e6e6c47c3a4b5053c39151e

Mary M. Chapman began her professional career at United Press International, running both print and broadcast desks. She then became a Michigan correspondent for what is now Bloomberg BNA, where she mainly covered the automotive industry plus legal, tax and regulatory issues. A member of the Automotive Press Association and one of a relatively small number of women on the car beat, Chapman has discussed the automotive industry multiple times of National Public Radio, and in 2014 was selected as an honorary judge at the prestigious Cobble Beach Concours d’Elegance. She has written for numerous national outlets including Time, People, Al-Jazeera America, Fortune, Daily Beast, MSN.com, Newsweek, The Detroit News and Detroit Free Press. The winner of the Society of Professional Journalists award for outstanding reporting, Chapman has had dozens of articles in The New York Times, including two on the coveted front page. She has completed a manuscript about centenarian car enthusiast Margaret Dunning, titled “Belle of the Concours.”
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  43. ASPA:
    𝗙𝗥𝗜𝗗𝗔𝗬 𝗮𝘁 𝗔 𝗦𝗣𝗔: 𝗔𝗺𝘆 & 𝗯𝗲𝘀𝘁 𝗺𝗮𝘀𝘀𝗮𝗴𝗲 𝗥𝗮𝗰𝗵𝗲𝗹 🅰️𝐀 𝐒𝐏𝐀🅰️, 28 South Unionville Ave, Unit 5, Markham. 🅰️𝗖𝗮𝗹𝗹 𝟲𝟰𝟳-𝟳𝟮𝟵-𝟲𝟲𝟬𝟲 𝗼𝗿 𝘁𝗲𝘅𝘁 𝟲𝟰𝟳-𝟴𝟯𝟵-𝟱𝟵𝟲𝟲🅰️ AMY is young and very friendly, standing 158 Cms. with 34C Cups and a very nice bum. Amy is a very popular student, young, sexy, and open minded. She is in demand for her good massage
  44. bnwellness_wilson:
    We have 4 girls are working today, young fun Ivy 36DD with big buttocks open mind and cute Tina with curve body open mind, sweet GFE Lina and sexy Coco are providing deep tissue and sensual massage, pls call 416-3985777 book appointment and walk in always welcome, back entrance and parking available. 350 Wilson Ave North York
  45. ForeverWarden:
    Friday at 🫦❤️🔴🟥♾️𝓕𝓞𝓡𝓔𝓥𝓔𝓡 𝓢𝓟𝓐♾️🟥🔴❤️🫦 2190 Warden Ave, Unit 201, Scarborough 𝟰𝟭𝟲-𝟴𝟬𝟬-𝟳𝟴𝟴𝟳 : Lisa, Mia & Sasa. Lisa is a young, slim, friendly & very beautiful Vietnamese beauty with a nice body, nice 34D boobs, slim waist, impressive booty, nice massage, great services. Mia is a Caribbean service queen temptress with incredible curves & very friendly attitude. She is able to bbbj like a queen
  46. HolidaySpa:
    Friday at 🌴😎🌅𝓗𝓸𝓵𝓲𝓭𝓪𝔂 𝓢𝓹𝓪🌅😎🌴3517 Kennedy Rd, Unit 4, Scarborough ☎️𝟰𝟯𝟳-𝟮𝟰𝟳-𝟭𝟭𝟵𝟵☎️: LINA & CINDY. LINA is very well known for her great services and her impressive shapely ass. Come and see why! You will be glad you did. CINDY is a slim & incredibly sexy lady with a smile that will melt your heart, & an ass that will fire up your spirit. Her services are among the best!
  47. SugarLoveSpa:
    Friday at ❤️💙 💜⎝𝗦𝗨𝗚𝗔𝗥 𝗟𝗢𝗩𝗘 𝗦𝗣𝗔⎠💖💗💘:ELLA, LUCY & LUNA. 1270 Finch Ave W (at Keele St), Unit 18. North York, ON ☎ 𝟰𝟯𝟳-𝟯𝟲𝟱-𝟮𝟲𝟴𝟴 ☎ ELLA is a lovely Thai sweetheart, 5’1” with C Cups, smooth skin and a very pleasing attitude. LUCY is a cute young Vietnamese girl, 5’1”, 50Kgs, with a full range of services available. LUNA is a slim, VERY PETITE and capable Vietnamese beauty
  48. Red Rose Spa:
    🌸 We have 9 hot brown girls Friday 🌸 MALIYA, DIYA, SALMA, AMANDA, ANGELINA, SARA, NUR 🌸 2588 Birchmount 🌸 2 Invergordon 🌸 647-702-8800 🌸 Please visit for a great erotic massage
  49. lotushubspa:
    Hi, 💋Louts💋 recommends the best female masseuse to customers today, Anna💋 from China, Helen💋 from Taiwan, 💯Coco💋 from South Korea, living at 10737 Yonge St Unit13. Please contact 9052375885☎️ or SMS 4163565876, 💋Thank you
  50. Annie Spa:
    🎉🍒ANNIE SPA🎉🍒 ✅7-1001 SANDHURST CIRCLE✅ 👌SCARBOROUGH ON M1V 1Z6👌 ☎️ (647) 891-9688☎️ ☎️ (416) 291-8879☎️ (FINCH & MCCOWAN) OPEN 9:30am to 9pm MONDAY to SUNDAY 🔥✅NEW MANAGEMENT💯NEW GIRLS🔥🔥 🔥GORGEOUS NEW YOUNG ASIAN GIRLS - TODAY’s ROSTER INCLUDES: 🔥 Vicky🥰A new arrival at our branch 🎉👯‍♀️Vicky is a very young CBC part time student working for tuition fees and books, this bright young sexy girl is willing to showcase her eagerness to please AND be pleased. Busty 36DD boobs
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